Tuesday, July 7, 2015

July Update {Epilepsy Awareness}

It's been a while since I updated.  Life gets busy and there is just no time for getting on here right now.  I would love to change that but I'm not sure how to make that happen.

There's a lot that I don't post, that I don't talk about.  I do my best to focus on the positive and to avoid the negative.  But sometimes that's hard to do.  We all want that perfect life, to put on the front that everything in our lives is glorious and amazing but when it comes down to it, we're just putting on a face that is not real.  That's the face I've had plastered on for a while.

It's hard being a Mom of four kids, even harder being a Mom of kids with Special Needs with 3 of the 4 having Epilepsy.  It's hard to wake up praying that this morning, on this day, your child will not have a seizure.  It's hard holding your breath when your son begins to cry, to rush to console him and meet his needs so he doesn't drop into an Involuntary Breath Holding Spell and have the accompanying seizure.  And when it does happen, you simply pray for it to be done and over with so that as a parent you can return to breathing again.

Yea, I hold my breath a lot.

You cannot understand my life.  You cannot understand what it's like to watch your child lay lifeless.  You will never understand what it is like to see your child lost in a seizure that lasts 13 hours straight, wondering if the medical team is going to get it to stop with the multiple medications they've injected.  You will never understand what it's like to wonder if your child's seizure will ever stop, if it will cause brain damage or other irreparable damage.  The only ones who do understand the truth of this are those who love and care daily for someone with Epilepsy.

The real truth is that any day I could have a seizure that leaves me laying in a vegetative state, or dead.  Any day my children can have a seizure that leaves them the same way.  I hold my breath with every seizure that hits us.  I patiently wait for them to end.  I wait to see what damage is done and I'm praising God every time it's over with no issues.

As a family, we've been extremely lucky.  There are others who aren't as lucky as us.  There are many who don't make it through.  I don't know why God blesses me to because any day that family that loses their loved one to a seizure could be us.

My biggest fear is losing my children.  My biggest fear is having to bury one of them and never being able to love and hold them again.  I know one day I will see them in Heaven but it doesn't ease the missing of them here on Earth.  Every day I pray I never see this fear come true in my life.

This is my day to day.  At this point, the kids are well.  Laycie is controlled on her Lamictal with no rashes and her appetite has returned.  Except for her ADHD being aggravated a little and her 7 going on 27 attitude, she's doing wonderfully.

Jackson is currently off medication.  His doctor was hoping he had outgrown his IBHS but he hasn't.  With the stopping of medication, his IBHS has returned along with the seizures.  We are waiting for a repeat EEG next month before attempting medication again.  I'm praying he does well until then.

Winston and Emmalee are doing very well.  I wish time would slow down because they are definitely not babies anymore.  Kids grow up too fast.

Laycie's genetic results came back.  She has four possible abnormalities but one particular that the geneticists believes may be our familial culprit for Epilepsy: gene PRRT2 which is known to trigger seizures in children.  It is now being tested against my blood sample to see if it's a viable choice.  Determining this gene allows for us to have better treatment options for now and also future generations and that truly makes me excited.

Well that is the update for now.  Not much else has been happening.  Until next time...

Tuesday, June 23, 2015


So there comes a point in life when you just cannot breathe anymore.  Life becomes too much.  The drama is overwhelming.  Day to day is too routine and you feel like you're stuck in a rut.

There comes a point in life where you become tired.  Tired of the lies.  Tired of pretending things are not as they are.  Tired of putting on that fake smile just to make the world happy.

There comes a point in life where you stop.  You think, analyze, pray, plead, think some more and you realize the only way it's going to change is if you make the conscience effort to see that it does.

There is only so much forgiveness that one can give before they figure out it's not worth it.  There is only so much one person can take.  No one if perfect, and that is completely understandable but sometimes you just have to admit that it's not changing and it's not working for you.

Life should be enjoyed.  Life should be shared.  Life should be created through love, laughter and experiences shared by those who make us happiest.

Life should not be filled with remorse, pain, dislike, unhappiness and lack of joy.  Life should not be routine and miserable to live.  Life should not bring us down more than it brings us up.

Each of us has our own struggles and strife.  We are unique among ourselves.  We must each figure out the right and the wrong for us, for our own lives and learn to live, to enjoy every moment like it's our last.

I look back on my life and I see so many of the joyous moments but lately those have been outweighed and outnumbered by all of the unhappy moments.  I was lost.  I couldn't find my way out of the darkness that was consuming my soul.  I found myself praying daily for God to ease the pain that I was feeling. I found myself wishing at times that my time in this world was done with.

Yet I don't.  I have my children to watch grow and theirs to come.  I wish for happiness in my life, to be able to live out my days basking in the glory of their beautiful smiles, wrapped in the laughter and joy.

One day I hope to find the man that was made to love me and to be able to share our lives together, along with our children.  As many days as I give up hope, I still have my mustard seed of Faith to carry me through.  I know the things I want in my life and I wish, hope and pray for it all to happen.

Life changes are already in the process but it's a long road before I am where I need to be.  It's a long road to find myself again after so much pain has consumed my life for so long.  But I know I will overcome it all to become the best Mom, best friend, best person that I can be.  At this point in time, that's all I can do and hope for.

God bless,

Thursday, March 19, 2015

Visual Learning Systems: Digital Science Online: Elementary Edition

Visual Learning Systems Review
Visual Learning Systems is Digital Science Online for both Elementary and Secondary school levels.  For this review, we used the Digital Science Online: Elementary Edition with my 6 year old, Laycie.  The program has been great for our family.  Laycie has absolutely LOVED it!  Digital Science Online: Secondary Edition is also available to use with older students.

Visual Learning Systems Review
Digital Science Online is the all in one place to access Elementary science lessons.  I like this program because it's interactive, allowing Laycie to work at her own pace and it's informative which allows her to learn as much as possible in the time she works online.  This program fits both her and our family well.

Digital Science Online: Elementary Edition is an annual subscription allowing you access to the program for one year.  There are more than 135 units of study covering grades K-5.  Each of these units are visual in design, drawing the students interest to the lesson and keeping the mind intrigued.

Parents, students and teachers also have 24/7 access to the program so learning can happen at any time.  It's easy to use and allows many options for lessons.  This makes for a great program to learn by.  There are videos, images, and animations available throughout the program, along with access to student and teacher content.

Some of the primary subjects we covered have been measuring length, exploring sound, using electricity, observing weather changes, learning about seasons, and so much more.  Subjects covered through the program for Elementary are Physical, Earth, Life and Health science.  We learned so much for these wonderful lessons.

Laycie and all the kids have enjoyed using Visual Learning Systems: Digital Science Online.  It's been a great program for our family and has fit well with our learning style.  I look forward to using the program throughout this year with my children.

I also love the fact that the lessons are laid out so thoroughly.  The videos are easy to access along with the animations.  There are worksheets available to use with students to ensure they are learning the information provided to them in each lesson.  Learning objectives are also provided which are great to show just what is being taught by each lesson covered.

Laycie enjoys the lesson videos the most.  The simple things she learns intrigues her and leaves her wanting to learn more.  Since the lessons are thorough though, we don't have to outsource a lot to teach her more.  It's all provided right on the website, easy for her to see and learn.

Visual Learning Systems: Digital Science Online is available for $99 a year for either Elementary Science or Secondary Science access.  Digital Science Online: Elementary Edition is for students in grades K-5.  Digital Science Online: Secondary Edition is for students in grades 6-12.

Visual Learning Systems can be found online in the following places:

Facebook -http://facebook.com/visuallearningsystems 

Twitter - https://twitter.com/visualearning

To read more reviews of Visual Learning Systems, click on the banner below!
Visual Learning Systems Review

Crew Disclaimer

Egglo Entertainment: An Egghunt Experience Like No Other {Schoolhouse Review}

Last year we were given the opportunity to review Egglo Eggs and other products for Egglo Entertainment.  We loved the company's products to much that we agreed to use them all over again this year!  Egglo Entertainment creates products that are exceptionally fun to use.

In our family, we're always looking for fun new items to use with our children.  We love having celebrations and gatherings that allow the kids to play and enjoy childhood.  We also love finding things that teach along with having fun.  

For this review, we were given a full set of Egglo Glow In The Dark Easter Eggs.  There are a dozen eggs per set.  These eggs are wonderful.  Made like regular Easter eggs, they come apart in the middle and are easy to open and close so you can fill them with treats and fun things.  Best thing though is these eggs GLOW in the dark!  That's right - you can hide them and see them at night.  You can even play hide and seek egg hunt inside with the lights out.  

These eggs also come with beautiful designs etched on the plastic, which shows as they glow.  They are charged through light like most glow in the dark products.  The colors are shine beautifully as they are used.  

In addition to the eggs, we received a copy of The Egg-cellent Easter Adventure.  This is a 40 page, full-color book all about Easter by Darcie Cobos.  It's illustrated by Golden Street Animations.  The illustrations are eye-catching and gorgeous!  We have read this book over and over because it is such a great story to read and share.

The Egg-cellent Easter Adventure helps connect the use of Easter eggs to the story of Jesus by sharing the Gospel in an easy to understand and simple manner.  Following Hardy, Anastasia, Pascal and even Zeke the dog around as they search to find these glowing Easter eggs.  Each egg they find shares a bit of Jesus's story throughout the book.  Children learn from the adventures of these three children as they read the story. 

We also received a set of Egglo Treasure Scripture Scrolls.  These tiny little mini scrolls share the story of Jesus and provide some extra fun for children.  We stuck them inside the eggs to allow the kids to look over them and enjoy as we did our hunt.  

In addition to all of the above materials is the Egg-cellent Easter Adventure Program Guide.  This is a one time download of all the curriculum necessary to use with the Egg-cellent Easter Adventure program.  This includes coloring pages, extra scrolls to share, mini paper Easter eggs, activities to complete, recipes for themed snacks, and so much more!  There are 60 pages in this curriculum set.

My children have truly loved playing with these eggs over the past year.  We haven't just used them at Easter but at several events.  They were so excited to receive a new set of eggs for this review because that allows us to have more eggs for them to find.  And at a $9.99 value, you can't beat the price!  We look forward to continue using these eggs and the other wonderful products that go along with them over the next  year.

You can purchase a set of Egglo Glow In The Dark Easter Eggs for $9.99.  The Egg-cellent Easter Adventure is a full-color book and is available for $9.99 as well. You can purchase Egglo Treasure Scripture Scrolls for $4.50.  The Egg-cellent Easter Adventure Program Guide/Curriculum is available for purchase for $9.99.  The entire Egglo Kit with curriculum all together can be purchased for $50.00.  Egglo products are for children of all ages!

You can find Egglo Entertainment in the following places online:

To read more reviews on Egglo Entertainment, please click the banner below.

Egglo Entertainment Review

Crew Disclaimer

Friday, January 30, 2015

Finding Me

I woke up one recent day and realized I really don't like myself.  There are parts of me that I absolutely love and parts of me that need repair.  There are lost parts that I'd like to find again and so many parts that I'd like to just change and remove from myself.

This year will be the year I work on all those things.  I wish to find myself, my happiness and love and light again.  I want to bring back the joy and the girl I should have been that I have allowed to be destroyed by life itself.

Life is a hard journey and it changes us, sometimes without even realizing it.  Over time we stop doing things that we love, things that make us unique.  We conform and just live day to day instead of really living life to the fullest.  The journey becomes heavy and a struggle.

It's time to find me - to bring to the front the joy of life and to live.  No reason to be scared as I am who I am and who God made me to be.  He has never failed me and He will not let me down.  I want to shine as He intended me to and with His help and His blessing I will do just that.

Friday, January 23, 2015

Friday, January 16, 2015

Mid January Update

Another week has passed filled with so many things to do.  The weather hasn't allowed much outside time so the kids are climbing the walls inside the house.  They've invented their own fun, playing with each other, reading, working on building projects - whatever they can come up with to burn off that pent up energy.

January is passing fast and this month is filled with appointments for us  now that we are finally past the Flu and Bronchitis of the past few weeks.  We have neurology, therapy, and genetics.  We are adding in an eye doctor appointment and more therapy as well.  Life is never not busy around here.

All we can do is take it day by day but I'm really hoping some pretty weather comes soon so the kids can get outside, run and play.   Until then we play things by ear.  See ya next time...

Sunday, January 11, 2015


When starting over and redoing one's life, where does one begin?  What do you even start with?  Yourself? Your family? Home? Life?

How do you decide what's the main thing to work on first?  Then there are the goals to set.  Which goals come first? Which ones get the most attention?  How do you chose one over another?

Where do you even begin to begin?

I'm sure I am not the only one asking these questions.  I'm sure they've passed through minds thousands of times before mine.  I'm just as sure that someone else is asking these same questions right now, looking over their life and wondering where to begin with it all.

So where would you start?  What's your story?  Share with me and let's all start again to find the way.

Friday, January 2, 2015

Happy New Year

May this year bring you all your hopes and dreams!

Have a happy and blessed New Year from me to you!


Related Posts with Thumbnails